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【好消息】贝贝的情况慢慢开始恢复了!(7月23日有更新)

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发表于 03-04 11:17| 只看楼主| 正序看帖| 发送站内信
以下内容引用自好男妈妈的大作:【育网牵手】帮助贝贝吧!【3月3日更新,有最近采访贝贝的视频!】

又来看贝贝了,不知道电台播出后,贝贝有没有受到关注,有没有人捐款?

干细胞的事情,又进展怎样了?



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发表于 03-04 10:46| 只看楼主| 正序看帖| 发送站内信
为你祈祷,可爱的贝贝!祈祷早点手术成功!不要再受这样的痛
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发表于 03-04 08:52| 只看楼主| 正序看帖| 发送站内信
加油,别放弃
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发表于 03-04 08:22| 只看楼主| 正序看帖| 发送站内信
贝贝我们为你的进步而高兴,贝贝,你是最棒的!
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发表于 03-03 18:12| 只看楼主| 正序看帖| 发送站内信

又来看贝贝了,不知道电台播出后,贝贝有没有受到关注,有没有人捐款?

干细胞的事情,又进展怎样了?

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发表于 03-03 17:39| 只看楼主| 正序看帖| 发送站内信

贝贝要加油哦~

希望就在前方!

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发表于 03-03 17:31| 只看楼主| 正序看帖| 发送站内信

看得哭了,不知怎样去帮助这个可怜的贝贝,希望他能好起来吧!

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发表于 03-03 16:47| 只看楼主| 正序看帖| 发送站内信

今天下班的时候给贝贝汇了200元,可能扣了手续费还有199元。也给贝爸发了信息,小小心意!希望贝贝能奇迹般快点好起来,祝福我们可爱的贝贝!!!



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发表于 03-03 16:46| 只看楼主| 正序看帖| 发送站内信
我都要哭了.......好可怜的宝宝......乞求上天不要夺走那个可爱的小生命,给予他新的生命吧!!!!!!!!!


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发表于 03-03 16:25| 只看楼主| 正序看帖| 发送站内信
以下内容引用貝爸寫的:

08/03/03 00:13:04 标签:有进步就开心

 太开心了,不骂他的一句心里不快活!近一段时间每天晚上贝妈老用自己的乳头试着奶贝贝,看看他是否还记得怎样吸食母乳。开始时他总是用仅有的两颗牙咬得贝妈只叫唤;我们都很沮丧,不管是娘肉的还是橡胶的他总是咬着扯着,我们没有放弃只是希望能给让他“想起”自己的一次“干掉”270ml牛奶的光荣历史,能让我们帮他找回昨日吃奶的快乐,通过半个多月的努力,今天这小子终于有点明白了还有“吸”这么个动词。贝妈先是试着用乳头给他演习了一回,贝好象比前几天略有转机,我们马上找来了久违的奶瓶给他反复冲洗后冲了50ml牛奶,虽然“吸”得很困难但他是主动的在吸,就是这么一点点牛奶居然吸了快一个小时,虽然吸得很艰辛但贝却乐此不疲。牛奶中途冷了想给他拿到一边加热他还不乐意,居然加热一次就闹一次,这比半个月前强行灌奶是一个行为上的转机。起码在意识上已完全由被动进食变为主动要吃了,最搞笑的是我们把他的奶瓶拿到左边他的眼神就到左边,我们把他的奶瓶拿到右边他的眼神就到右边(贝贝的头还不能动左右,只能用眼珠儿上下左右的看),一没看到奶瓶子就叫起来了!一看到就笑了!既为贝开心又为他难过!但总体上不是为他有了主动意识而高兴!
應該是好消息~~~

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发表于 03-03 15:24| 只看楼主| 正序看帖| 发送站内信

希望小贝贝能快点好起来.

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http://tree.ci123.com/tree.php?treeid=169243" target="_blank" > 许愿树- 育儿网http://tree.ci123.com/images/icon_jiaohua.gif" border="0" width="160" height="180"/>


http://tree.ci123.com/tree.php?treeid=169246" target="_blank" > 许愿树- 育儿网http://tree.ci123.com/images/ico-jiaoshui.gif" border="0" width="160" height="180"/>

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发表于 03-03 14:52| 只看楼主| 正序看帖| 发送站内信

加油啊,宝宝

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发表于 03-03 13:11| 只看楼主| 正序看帖| 发送站内信

我之前跟贝爸联系,他有这么一封英文的信件,我希望贴上来,让楼主放在最前,让那些国外的都可以看到英文版,希望能够得到最到的帮助。

Letters of Asking for Help
Dear Friends,
We are a young couple from China .We feel so soory to disturb you at the beginning of this year.Today we write this letter for you is to ask for your help. We know that Britisher are very warm-hearted. So we hope that you can help our little child and rescue his life.
Two months ago,our little child named Yuan Ye (CHINESE :袁野) had a terrible disease which is called Methylmalonic Acidmia MMA.His nickname  is Beibei .Beibei was born in 2007’s Christmas Day and he was only 11 months old when he got this illness.We have already cost more than 100,000 yuan(RMB) for curing his disease and we borrowed a lot of money form. our friends and relatives.But we are both from the county,we still don’t have our own house two years after we get married. Only Beibei’s father have a job in two of us.His wage is only about 2,000 yuan per month,so we don’t have so much money to rescue our son. But we really don’t want to give up because we love our little baby,we need him.
We had seen doctors in many hospitals but they couldn’t rescue Beibei’s life. Now we are curing Beibei in Beijing University NO.1 Hospital(CHINESE:北京大学第一医院).We live in a basement which is next to the hospital temporarily so that we can go to the hospital conveniently.We bring our son to see the doctor everyday but the trueth let us become hopeless and disapointed slowly. Beibei  cries loudly every day and night.We know his body hurt heavily,but we don’t kown what to do.He seems have forgotten how to swallow and we had to feed him food by force.
In these several months we cost our all money but Beibei didn’t get better.He had been in a coma many times.We also had made emergency rescue many times.We don’t kown when he would  come to himself  each time.We are worried about him and hope the society could help our little son.
We kown that many other children who have this disease have already died,but we still believe in miracles will be up on him.Our son is only 13 months old,he is a so lovely little boy.How we wish that he could call us dad and mum!How we wish he could have a happy childhood like other children!Fate is so unfair to him.
Many kind chinese people donated money to Beibei,but it is not enough to pay for his expensive medical expenses. Many web sites also give us a hand to report Beibei’s story in order to find more people to help him.Today we want to ask you for help.And we hope all the children who have got this disease would get well and live a healthy life.
   If you want to know more information about Beibei ,you can visit these  Chinese Web Sites(I am so sorry there is no English version)
1.http://bbs./read.php?tid-64161.html
2.http://bbs.ci123.com/post/2597322.html
3.http://blog./blog.php?uid-11328.html(This is Beibei’s blog which is whote by his mother.)
 
Beibei is waitting for the Stem-cell transplant operation now. As a famous Professor in China said, he is the best time to take an opertaion, but the mainliy difficulty is money. So we are looking for any groups or peoples to help him. Can you give a hand? Thanks a lot

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发表于 03-03 12:08| 只看楼主| 正序看帖| 发送站内信

对啊,不要放弃,我在努力给他“散播”消息~

希望能够得到更多的回应~

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发表于 03-02 12:32| 只看楼主| 正序看帖| 发送站内信
提议大家把贝贝的主页继续下去,让大家都来关心帮助这个苦命的宝宝!
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